I’m a 30-something year old living with systemic lupus erythematosus and fibromyalgia. I was diagnosed with lupus at 16, but was lucky enough to go into remission quickly. I was so grateful to finally have a diagnosis, that I didn’t spend a lot of time thinking about the implications of that diagnosis. As a result, I never truly acknowledged or dealt with what it means to have lupus. Five years later, I went into a catastrophic, life-changing flare. I call that my "real" diagnosis, and it completely changed how I live my life. Over the years, I gained a fibromyalgia diagnosis too.
I started this blog for a lot of reasons, but here are the primary three:
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To connect with others in the chronic illness community, who teach me constantly, support me endlessly, and who provide a sense of belonging
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To serve as a resource and support for others living with these illnesses, especially the newly diagnosed who are often extremely overwhelmed
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Provide insight into life with chronic illness for people whose friends and loved ones are living with these diseases
Trying to get my life sorted is proving to be a constant challenge, but I’m doing the best I can. Living with chronic illnesses is a constant juggling act, and I don't always get it right, but I'm always trying to figure it out. Come join me on my adventures!
Note: If you've been following along for a long time (some for over 10 years!) then you may have noticed that we shifted to a new site (again). If you were redirected unexpectedly, not to worry - you're in the right place. Welcome!