I’m a 30-something year old living with systemic lupus erythematosus and fibromyalgia. I was diagnosed with lupus at 16, but was lucky enough to go into remission quickly. I was so grateful to finally have a diagnosis, that I didn’t spend a lot of time thinking about the implications of that diagnosis. As a result, I never truly acknowledged or dealt with what it means to have lupus. Five years later, I went into a catastrophic, life-changing flare. I call that my "real" diagnosis, and it completely changed how I live my life. Over the years, I gained a fibromyalgia diagnosis too.
I started this blog for a lot of reasons, but here are the primary three:
To connect with others in the chronic illness community, who teach me constantly, support me endlessly, and who provide a sense of belonging
To serve as a resource and support for others living with these illnesses, especially the newly diagnosed who are often extremely overwhelmed
Provide insight into life with chronic illness for people whose friends and loved ones are living with these diseases
Trying to get my life sorted is proving to be a constant challenge, but I’m doing the best I can. Living with chronic illnesses is a constant juggling act, and I don't always get it right, but I'm always trying to figure it out. Come join me on my adventures!
Note: If you've been following along for a long time (some for over 10 years!) then you may have noticed that we shifted to a new site (again). If you were redirected unexpectedly, not to worry - you're in the right place. Welcome!